The Book is Out!

June 28, 2011 at 2:17 pm (Asperger's Syndrome, Book review, Marriage, Writing)

It has been nearly a year since I posted on my blog – for good reason! First of all, life jumped up and demanded a lot of attention in a big way. Second of all, I have been working on getting the book version of Loving the Tasmanian Devil published, and now it’s out!!

AAPC Publishing, which is Autism Asperger Publishing Company, has just released my book which is available on their website or on Amazon. Enjoy!

The fabulous sculpture on the cover is an interior view of Kerplunk! by artist Sher Fick. Love her to pieces!!

And now that summer is here, I am hoping I can get back to blogging.

Permalink 5 Comments

Confidential Spouse Chatroom

January 24, 2010 at 7:36 am (Asperger's Syndrome, God, Marriage, Rant)

I have met so many wonderful people as a result of this blog. It is nice to know that my random ramblings have been helpful to other spouses of Aspies. I have had the good fortune to chat with several of these people by e-mail in a more confidential setting. I thought it might be nice to have a protecteed chat space where we could “talk turkey” about day-to-day life in an NT-AS relationship. So I have added a page at right that is password protected and only for those married to an Aspergian. If you have already corresponded with me by e-mail, please e-mail me and I will send you the password. If you are a spouse and would like the password, please e-mail me for it at bartletm@dcmoboces.com.

Permalink 2 Comments

Patty Hearst, my new BFF

January 17, 2010 at 7:42 pm (Asperger's Syndrome, Book review, Childhood, Family, Farming, Marriage, Rant)

I have a new colleague at work this year. We have lots in common: we are the same age, we both have three boys at home, we both teach these bizarre hybrid courses. But in many ways, we could not be more different. She is tall and blond; I am short and brown-haired with glasses. Her husband owns the country club; my husband owns a dairy farm. She is very organized; I am … not.

But here’s the most startling difference. The other day she referred to her husband as “the morning guy” in terms of kid duty. And then she described him: He goes to work out at the YMCA at 5:30 AM, comes home, makes coffee and brings my colleague a cup in bed, gets their kids up, makes them a big breakfast, gets them out the door, and then cleans up the dishes. My colleague has come downstairs by this point to join them for breakfast and say goodbye. Her husband leaves for work, my colleague takes a shower and heads to work herself. (NOTE: take her job and add to it five English classes, and that’s my job.) She is a gracious and lovely person and said she was so grateful that she could stay home and raise their kids and wait to find a job that she really loves.

For a typical day in MY life, please refer to Tuckered-Out Duck: A Day in My Life.

Now, let’s assume that F. Lee Bailey was speaking the truth and that Patty Hearst was brainwashed by her kidnappers into joining the Symbionese Liberation Army. And let’s also imagine that on April 15, 1974, she for some reason snapped out of it and found herself in the middle of the Hibernia Bank heist.

I imagine her suddenly looking around, looking down at herself holding an M-1 carbine, and saying “What the …”

That is exactly how I felt during this conversation, as if I suddenly snapped out of my 20-year relationship with My Favorite Aspie and found myself saying “Wait … THAT’S a normal marriage? What the heck is this that I’m doing?”

I am sure other people also wonder that as they look at my weird life. Every once in a while someone witnessing my husband and me together will give me pointed looks as if to say, “You don’t have to live like this. There are places you can go” or alternately “I don’t know how you put up with him.” I have actually had people say that exact sentence to me, and I have given them the innocent questioning face, as if to say, “What? All’s normal here.”

I had a similar “What the …” when I read Home Safe over the summer. WARNING: NT wives with AS husbands, do NOT read this book, especially if you are a wannabe writer. Read every other thing Elizabeth Berg has ever written but avoid this one at the risk of anaphylactic shock.

Now, I truly adore Elizabeth Berg. I eat her books like pancakes off a stack. And I have seen her in person: she is lovely and gracious and her books are all warm-hearted and magnanimous and read so smoothly it’s like drinking the best ever cup of cocoa in book form, but I just about threw Home Safe across the room in despair.

The basic plot is this: The protagonist is a successful writer who, for the twenty years of her marriage, has every day rolled out of bed and to her computer in her pajamas to write while her husband takes care of EVERYTHING ELSE. As the book starts, she has been a widow for almost a year (I truly was saddened by this) and she is trying to get herself restarted. She suddenly finds out that her husband has taken a big chunk of their investments and purchased a house in California, which he has had custom-redesigned and redecorated in order to create exactly what he knows is her dream house, right down to the bookshelves filled with all her favorite children’s books, a fieldstone fireplace, a pie safe, a six-burner stove, a bathroom with artisan tiles and a shower with its water falling over a rock ledge, French doors leading from bedroom to garden, a small wooden shed outside for writing, a treehouse shaped like a ship’s cabin.

I’ll stop there before I cry. First, I fully recognize how much I have personally given up to make the dream of the farm come true (giving up any of my writing ambitions in the process), so this protagonist’s pre-widowhood life is beyond my imagining. Second, it is astronomically far outside the realm of possibility for Andy to know and create my dream house. It’s not his fault; it’s the Asperger’s: limited Theory of Mind ability, limited empathic response, and whimsy regarded always as unnecessary and illogical not to mention inefficient.

In thinking about this recently, I know there are several very logical reasons why it took me so long to really realize that something was a bit amiss and that our marriage situation was somewhat askew.

REASON ONE: Kid Sister Complex

I am the youngest of my family, younger by five years than my sister and younger by seven years than my brother. I grew up as the little tag-along, always clueless, always mocked, always sure that EVERYONE knew more about how to act and what to do than I did.

Andy is seven years older than I am. When I met him, I was going through a Linda Ronstandt phase, of the Nelson Riddle Orchestra “What’s New” album era, and I was constantly crooning “I’m a little lamb who’s lost in the wood, I know I could, always be good, to one who’ll watch over me.” Yep, looking for a father/big brother figure. I confess it. And so I always assumed Andy knew better. He was much older. He was an A-Dult and I was a kid. I followed his lead. Easier and cheaper to paint every single interior wall off-white? I guess so. Every once in a while I would cock an eyebrow and question something, but rarely. I figured, Older is Wiser.

REASON TWO: Dysfunctional Family

I also grew up in a dysfunctional family, loving but influenced heavily by alcoholism. I knew my family was not normal. I avoided bringing people to my house. I did not talk about what was happening at home. And I therefore saw all other families as infinitely more normal than my own. My in-laws, therefore, seemed paragons of normal. After all, they were both medical professionals, had a nice house and a vacation home, recreated with other adults, cooked gourmet meals. My family did none of these things. I assumed I was marrying into an incredibly normal WASP family and would be immersed into normal by means of their eldest progeny. Any choice of Andy’s I assumed to be normal with a capital N.

REASON THREE: The Farm

We knew, walking into the agricultural world, that nothing in our lives would be quite like other college graduates’ lives. Also, Andy was the Ag major. I was English/Art. I knew nothing about farming (besides what I had gleaned from the Little House books) and that meant that whatever I was told about anything related to the farm I took at face value. Also, we did nothing but work and worry for fifteen years. Work and worry, worry and work. Our  situation economically and ergonomically was so outside the norm that all other components of it – including our marriage relationship – were assumed part of the lifestyle marginality. Work from 3:30 AM until 9 PM seven days a week? Normal, considering the circumstances. Constantly do things for the farm, never the house? Normal. Every cow problem a fatal catastrophe? Must be. Him’s the Ag major.

REASON FOUR: Isolation

We are isolated here. I mean isolated. The long days, the far-away family, the lack of time for friends, the ten-mile drive to town, the five-mile neighbors. We had no real reflection of our lives in the eyes of friends or family, no one to pull me aside later and say, “Uh, Mo? Is everything alright?” Our families did this sporadically (Andy’s mother even said to me once “I do NOT like the way Andrew speaks to you”), but much of the odd behavior I was able to explain away by the omnipresent stress of starting the farm.

REASON FIVE: Stockholm Syndrome

This one’s a stretch, but worth examining. According to the net’ s most reliable source of information, Wikipedia, Stockholm Syndrome explains an abductee’s or hostage’s love and loyalty toward his or her captor. The psychological explanation is that people will not allow themselves to remain unhappy for long because it causes cognitive dissonance. To resolve the dissonance, the person psychologically manipulates herself into being happy in the situation in which she finds herself, i.e. “I LOVE my captor. I CHOOSE to be under his control.” The other explanation likens the psychological strategy as akin to newborn attachment phenomenon. It is wise to attach to the nearest source of food and warmth since survival depends on it. And so, I was grateful for any let up in the endless grind. “My husband let me sleep in until 5 this morning! Isn’t he kind!”

But, there’s hope. I did find out about Asperger’s and can now differentiate between AS behavior and normal behavior. All this reading and breaking out of the NT-AS thang has liberated me from my blinders. Yeah, I’ve ruffled some Aspie feathers, but there’s a lot at stake here, especially my sanity.

Here’s Patty Hearst after her release from the Symbionese Liberation Army, with her former body guard, then fiance. Look how stinkin’ happy she looks! And look at that man – Is he going to ask her to lift a finger? No way. It’s going to be all about Patty. You go, girl! If you’re going to have a man with a gun glued to your side, make him not a captor but a bodyguard. And remember, you might have to be the one explaining to him which one to be.

Permalink 7 Comments

Me and My Main Man Ralph

December 1, 2009 at 12:33 pm (Asperger's Syndrome, Book review, Family, Gorgeous Writing, Marriage, Rant, Writing)

The Perpetual Male Adolescence Festival (aka Shotgun Season) is in full swing here in Central New York. Mighty Hawkeye has already gotten four does with his bow and one monster buck (update : two monster bucks) with his shotgun (update: and one doe with his muzzle-loader). At the risk of offending anyone, I feel I must rant.

I spent too many years teaching Lord of the Flies to sophomores. I love Lord of the Flies, can practically recite enormous portions by memory; it was the sophomores that got taxing. It’s been eleven years since I cracked the cover, but one scene always jumps to mind when hunting season rolls around again, and so I cracked.

Ralph and Simon have been valiantly attempting to build huts on the beach while Piggy allegedly watches the Littl’uns and avoids asthma. Jack is rapidly devolving into primitive hunting mode, and is intently thinking like a pig, plotting his kill:

“Ralph gazed bewildered at [Jack’s] rapt face.

‘-they get up high. High up and in the shade, resting during the heat, like cows at home-‘

‘I thought you saw a ship!’

‘We could steal up on one – paint our faces so they wouldn’t see – perhaps surround them and then-‘

Indignation took away Ralph’s control.

‘I was talking about smoke! Don’t you want to be rescued? All you can talk about is pig, pig, pig!’

‘But we want meat!’

‘And I work all day with nothing but Simon and you come back and don’t even notice the huts!’

‘I was working too-‘

‘But you like it!’ shouted Ralph. ‘You want to hunt! While I-‘

They faced each other on the bright beach, astonished at the rub of feeling.”

The Modern Version:

“Mo gazed bewildered at Husband’s rapt face.

‘-they get really careless when they’re in rut. If you sit really still in one place-‘

‘I thought we were talking about Eldest!’

‘You have to be downwind, and brush your teeth with baking soda, and wear Scent-lock … ‘

Indignation took away Mo’s control.

‘I was talking about the kids! Don’t you care about their future? All you can talk about is deer, deer, deer!’

‘But we need meat!’

‘And I work all day downtown, which you would hate, and you come back and don’t even notice the 20-year-old bathroom!’

‘I was working too-‘

‘But you like it!’ shouted Mo. ‘You want to hunt! While I-‘

They faced each other in the kitchen, astonished at the rub of feeling.”

And so it goes.

I did make it to 50,000 words and got a big “You win!” graphic from the National Novel-Writing Month team (me and over 32,000 other people). Ironically enough, my novel is set in a future year when the people of Central New York are literally fighting for survival, and a good hunter is worth his weight in lost college-planning conversations.

And really, I must admit that I love venison, Husband is a fabulous cook, he is an extraordinarily skilled hunter, he is working on the bathroom, and if I were able to live a turn-of-the-last-century life and stay home cooking and baking, I would feel very different about the whole thing.

And much as I revere William Golding and his brilliant analysis of human nature, according to his biographer John Carey, he was “a reclusive depressive who considered himself a ‘monster’, a victim of fears and phobias who battled against alcoholism, and a writer who trusted the imagination above all things.”

There are dangers in trusting the imagination above all things, as Husband is quick to tell me. Imagination alone might lead to a Nobel prize, but it doesn’t fill the freezer or keep the house warm. So, I tell myself, Back off, English geek! Once you publish a book and make some money at your hobby, you can sneer at your husband’s hobby, which does at least feed the family.

Meanwhile, me and my main man Ralph are going to shut up and keep working on the huts and keeping track of the Littl’uns.

Permalink 2 Comments

Trolling for Chinook on Lake Ontario

August 9, 2009 at 5:45 pm (Childhood, Films, Fishing, God, Ireland, Marriage, Music)

Here is a movie of the trip Andy, Elliot, and I took on Lake Ontario. This is Andy at his very happiest – fishing.

(Elliot gets the credit for the ending footage of waves.)

Great_Big_SeaThe song is “Wave Over Wave” by Great Big Sea, a band that I love from Newfoundland. All the guys in the band are Irish, Canadian, English majors, and play hockey. Could you ask for more? The guy on the left is Alan Doyle (sigh) who will be in the new Robin Hood movie to be released next year. He is at his most charming in this video of Great Big Sea and the Chieftains singing Lukey’s Boat. My second choice would be Sean McCann, playing bodhran: so stinkin’ cute.

But of course neither one is as charming as my hubbie!

Permalink 6 Comments

Anniversary? Perenniaversary?

June 2, 2009 at 12:49 pm (Asperger's Syndrome, Family, Farming, Gorgeous Writing, Marriage)

I was reminded that this Tuesday just past was our anniversary at 6 PM that night when I got a beautiful e-mail from my sister. I chuckled a bit when Andy came in at 6:30 PM, and I said to him, “Hey, it’s our anniversary.” He chuckled, too, and said, “Oh, yeah. It is, isn’t it.”

zeke

Zeke the Hound wants to give me away

serious porch

Kath, me, Andy, David; Dress made by Kathleen McCarthy, sister and anam cara

Part of the reason we are both kind of blasé about June 30 as any kind of significant date is because we had already bought the farm and been living on it for six months by the time we wed. In our own minds, we had already been married half a year.

Also, of all the moments that seem important in our marriage, that particular hour on that particular day in 1990 seems like a live coal in the sea. That was the easy part. It’s the 6,935 days since then that have been the “marriage.”

However, we also decided, Andy and I, that our cavalier attitude about our wedding day is perhaps not quite healthy. We probably should at least REMEMBER the day we wed.

Part of what makes me uneasy about celebrating THAT DAY as so important is that it somehow trivializes all the others since, like saying, “Gosh, THAT day of fun and ceremony and family and laughter, THAT day was awesome, and everything since doesn’t really measure up.”

Latin geek that I am, I just love teaching the Latin root “ann/enn” to my students – so many cool words come from it: millennium, annuity, biennial, bicentennial, superannuated, and of course anniversary, literally “the turning of the year.” It is how I keep straight annual flowers from perennials. Annuals last for “one year” while perennials (adding the prefix “per,” meaning “through”) last “through the years.”

Perhaps this is why I dislike the word “anniversary.” As I am likely to mutter sarcastically in the greeting card aisle, “Whew! Just barely made it ONE MORE YEAR so we can remember that joyous wedding day again!” At this point the owner of the store calls security and says “Would you get that damn Latin major OUT of here!”

So, for all you Latin lovers out there, may I suggest a new name for anniversary? How about perenniaversary, to celebrate making it “through” one more year and still going?

This is most likely just a pet peeve particular to my unique and annoying mix of etymology addiction and Asperger’s survival. So take it as such. If you like it, feel free to adopt it.

Meanwhile, at least my beloved sister gets it and sends appropriate sentiments. She said:

hugTurn the page.
Write your names together once more.
Dance a bit on the porch.
Smell the dark sweet night air.
Sleep beside one another.
It is enough.

She also sent this poem, which is lovely:

The Book
by Fred Andrele

lake tree

Photo Mary Warren Bonafini, fabulous sister-in-law

Did I meet you in that little shop
where the book of love is kept behind the counter?
Impossible, except our names are there
in golden script upon the luminary page.

Who would have thought the string bean boy,
the girl who squats and hops like garden toads
would find each other in the deep immensity
but there you are, my fingers trace your name.

I see mine linked with yours by radiant hearts
the shop’s proprietor, his quiet smile,
before the book is closed, takes up the feather pen
turns the page, and writes our names again.

Permalink 10 Comments